About the Project
What is the INSPIRE Project?
The INSPIRE Project is research supported by a grant from the National Cancer Institute (on the website: clinicaltrials.gov search for NCT03125070, or search online for grant number: R01 CA215134). The purpose of the project is to create and test an internet, social media, and mobile app program to address common concerns of blood stem cell transplant or bone marrow transplant survivors who are 2 to 5 years after transplant.
Transplant centers participating in INSPIRE are:
- Seattle Cancer Care Alliance
- Baylor University
- Cleveland Clinic
- Kansas University Medical Center
- Karmanos Cancer Institute
- Loyola University Medical Center
- Massachusetts General Hospital
- Medical College of Wisconsin
- Moffitt Cancer Center
- Roswell Park Comprehensive Cancer Center
- University of Minnesota
- University of North Carolina
- University of Pennsylvania
In addition, the Fred Hutchinson Cancer Research Center, the National Marrow Donor Program/Be the Match and the Center for International Blood and Marrow Transplant Research (CIBMTR) are participating in the project.
What is Fred Hutchinson Cancer Research Center?
Fred Hutchinson Cancer Research Center is in Seattle, Washington. It is one of 49 National Cancer Institute-designated comprehensive cancer centers nationwide. The Fred Hutch is where the procedure for blood stem cell and bone marrow transplant was first developed. In 1990, Dr. E. Donnall Thomas received a Nobel Prize for his work in making blood and marrow transplant successful in treating blood cancers (hematologic malignancies) and other blood diseases, first at the Fred Hutch and then throughout the world. Now patients are seen for their transplants at the Seattle Cancer Care Alliance, which is a partner with the Fred Hutch.
Why is the INSPIRE Project important?
There are now over 150,000 survivors 5 or more years after transplant. We know these people have a higher risk of health problems than people of the same age who have not had transplants. As the number of survivors grows, improving long-term health and quality of life for survivors becomes ever more important.
Who is participating in the project?
The project will include up to 1000 adults who are 2 to 5-year survivors of transplant.
How will my information be used during the project?
Our scientists will use your information to see if the project has helped to reduce common health concerns in long-term survivors of transplant. We will look at whether this website and mobile app help people like you to make the most of their lives and their health. The program focuses on tools for you to know what you need to do to be as healthy as possible, to track your tests and test results, and to feel good while reducing stress.
Is my information kept confidential?
How can I contact the INSPIRE Project?
You can email our project staff at INSPIRE@fredhutch.org. Or you can call us at our toll free number: 1-888-344-5678. We return messages within 3 business days.
How can I get more information about my rights as a research participant?
Contact Karen Hansen, Director, Institutional Review Office, Fred Hutchinson Cancer Research Center at 206-667-4867 or by email: email@example.com.