About the Project
What is the INSPIRE-AYA Project?
The INSPIRE–AYA Project is research supported by a grant from the National Cancer Institute (you can check the website: clinicaltrials.gov search for NCT04593277, or search online for grant number: U01 CA246659). The purpose of the project is to create and test an internet, social media, and mobile app program to address common concerns of young adult cancer survivors who are 1 to 5 years after diagnosis.
Transplant centers participating in INSPIRE-AYA are:
- Fred Hutchinson Cancer Center, formerly the Seattle Cancer Care Alliance
- Dana Farber Cancer Institute
- University of California Los Angeles
- Memorial Sloan-Kettering Cancer Center
- University of Pennsylvania Abramson Cancer Center
The project is coordinated by Fred Hutchinson Cancer Center.
What is Fred Hutchinson Cancer Center?
Fred Hutchinson Cancer Center is in Seattle, Washington. It is one of 49 National Cancer Institute-designated comprehensive cancer centers nationwide..
Why is the INSPIRE-AYA Project important?
We know that AYA survivors have a higher risk of health problems than people of the same age who have not had cancer. As the number of survivors grows, improving long-term health and quality of life for survivors becomes ever more important.
Who is participating in the project?
The project will include up to 1200 adults who are 2 to 5-year survivors of cancer.
How will my information be used during the project?
Our scientists will use your information to see if the project has helped to reduce common health concerns in long-term young adult cancer survivors. We will look at whether this website and mobile app help people like you to make the most of their lives and their health. The program focuses on tools for you to know what you need to do to be as healthy as possible, to track your tests and test results, and to feel good while reducing stress.
Is my information kept confidential?
How can I contact the INSPIRE Project?
You can email our project staff at INSPIRE-AYA@fredhutch.org. Or you can call us at our toll free number: 1-888-344-5678. We return messages within 3 business days.
How can I get more information about my rights as a research participant?
Contact IRO Director, Institutional Review Office, Fred Hutchinson Cancer Research Center at 206-667-5700 or by email: IRO@fredhutch.org.